Sign my Guestbook from Bravenet.com 
 

 

Sunday 4th March 2007

Over the last few months Amelia’s health has slowly been getting worse. We were told that there would be nothing more that anybody could do as the neuroblastoma and the treatment was too strong for her little body to cope with.

This has been such a hard thing to cope with for everyone as she has touched so many lives and her positivity has been such an inspiration to everyone who knows her.

Jacob is now aware of the situation although I’m not sure how much actually sank in. He has been such a brave little man and he gained his 100 metre badge in swimming earlier in the week which I think is absolutely brilliant for someone who is only 7 and going through the things that he has.

Over the last couple of weeks Amelia has been put on 24hour constant pain relief and now has become quite weak, but her spark still shines through!

We all love her with every bit of our hearts.


Monday 22nd January 2007

Amelia celebrated her 4th Birthday on 16th January. She had a lovely day and had visitors calling throughout the day with gifts, cards and good wishes. We had a party tea and her Grampy & Nanny Corston, Grumpy & Nanny Peasedown, Aunties, Uncles and cousins came. Amelia really enjoyed it as she loves having all her family around her.

We would like to thank all the people that left good wishes on her guest book and for all the gifts and cards she received through post pals. A special thank you to Project Linus for the beautiful hand made quilt they sent, Amelia loves it.

We have had a hectic month with Christmas and then Amelia’s birthday but now things are quietening down and getting back to normal.

Jacob played football on Sunday but unfortunately his team lost this week. He was so proud when he was named as player of the match and was given a trophy to bring home for the week. Leah and I are very proud of him and gave him lots of praise for doing so well. It must be hard for him seeing Amelia getting all the attention but he never complains and accepts his sister is poorly and needs extra care and love.

 Thank you all again for all your gifts and good wishes it means so much to us knowing there are so many caring people.



Friday 5th January 2007!!

Happy New Year!
We all had a fantastic Christmas, both Jacob and Amelia were spoilt rotten. They were
both bombarded with presents; they had presents from so may people. We have to say
thank you to everybody who bought them a gift, especially the parcel they received from
Georgies Fund and also all of the post and gifts sent from all the people at post pals.
Amelia was in good spirits over the Christmas period and loved opening all of her 
presents as did Jacob, they both have such a different way of unwrapping - Jacob just
goes for it and rips off all of the paper and moves onto the next whilst Amelia unwraps 
each one and studies each gift.
Jacob was told no matter what time he got up he was not allowed to open any presents
without anyone being there, he got up at 6am, brought his and Amelia's stockings
downstairs and waited until 8am before we all came down. He hadnt touched one thing
and was just sat down calmly waiting and watching TV. We had lunch at Leah's mums
and popped over to my mums in the afternoon, it was quite a hectic day but really
enjoyable.

New Years Eve was a really good night; we went to Leah's sister's house where her and
her partner had done a buffet for us. Amelia was on really good form all night, she was
tottering around giving orders and making sure that everyone did as she told them to do.

New Years day was much like Christmas day, down to Leah's mums for lunch and then 
across to my mothers for tea, where me and Jacob got introduced to the Nintendo Wii.
We got to do battle in the ring and also I got to fight my brother and not get hurt!

We are now preparing for Amelia's birthday in a couple of weeks from now (16th) and 
hope to make it as special as possible. Each birthday is so special and we are blessed
everytime one comes around. It will be Amelia's 4th birthday and on the 8th of February it
will be 2 years since she was first diagnosed so she has spent nearly half of her life
fighting Neuroblastoma.



Saturday 16th Dec - Monday 18th Dec

Things havent been going too good over the last couple of days. Leah and I were invited
to go to the Bath panto, which was really quite good. As the panto finished we received a
call from Leah's sister to say we needed to get home as Amelia was getting lots of pain.
When we got home we gave her a suppository and then some paracetamol, but this had
little effect. We gave her more pain relief during the night but still no good, we were all 
awake for most of the night. The next day we took Amelia in to the Hospital where she
was given a Fentanyl patch which should give pain relief for three days but before it kicks
in she had to have some morphine just to control her pain. As soon as she had had the 
morphine Amelia perked right up and seemed so much more relaxed. 
Sunday night was a little better but she seems to be still getting a little bit of pain in her
leg. Amelia had her bloods taken on Monday and they all came back really good although
they show that she is fighting something which is a good sign as she is fighting it!


Wednesday 13th Dec - Friday 15th Dec

Amelia's pain seems to be dulling down as she has had a whoopsie-daisy medicine for a 
couple of days. She seems quite comfortable and pretty cheery, and still eating really
well.
On Friday Amelia came along to Jacobs Christmas play where Jacob played one of the
kings, the one who brought gold. The play was called "Oopsie daisy angel" which Amelia
thought was quite funny as she thought it was an angel having a tablet up the bottom! 
The play was really good and Jacob was fantastic and seemed to love being on stage.

Friday 8th Dec - Tues 12th Dec   

Amelia has started to complain about pain in her leg now but we have managed to contain the pain with a combination of IV paracetemol and Diclofenic suppository or “woopsie-Daisy medicine”.
Amelia is starting to get really exited for Christmas now as we have started to put up our tree and decorations (which are mostly pink! Of course), we have also started to put decorations outside.
Every time Amelia sees something she wants for Christmas she tells me I have to phone her own personal elf ( who Amelia has named Francis ) to add it on her list for Santa!  

Thursday 7th Dec    

We are all so tired today as Disney is not a relaxing holiday!
Amelia’s CLIC nurse came today and couldn’t believe how perky and full of life she is. Amelia told her all about her holiday. Everybody loves to hear the way she explains about the holiday as she describes things in such a beautifully innocent manner. Our favourite is when she had her picture taken with Belle from “beauty and the beast”. When she says she was happy to have her picture taken with Belle but not the “Beef” as she calls him.

 
 

Click here for Previous news

 

 


|  Home  |  About  |  Latest News  |  Pictures  |  Medical History  |
|  Neuroblastoma Info  |  Jacobs Area  |  Other Links  | Guestbook
|  Donate  |

 

Copyright ©2006,2007 PmW